Adopting a patient-oriented approach (POR) to health research during a pandemic can feel challenging. Following are some tips and tools for supporting POR during the complex research environment created by COVID-19.
This page will be updated regularly as new tools emerge. Do you know of a virtual tool that can support POR? Please let us know so we can share it with the BC POR community.
Virtual Tools for Patient Engagement
1. From our colleagues at INVOLVE in the UK for virtual patient and public involvement (PPI), important considerations during the pandemic
3. Kite, J., & Phongsavan, P. (2017). Insights for conducting real-time focus groups online using a web conferencing service. F1000Research, 6, 122. https://doi.org/10.12688/f1000research.10427.1
Read the article
4. Research Design Review's Focus Groups: Moving to the online Face-to-Face Mode
Read the post
5. Sutherland Lab's Global Tips for Conducting Remote Focus Groups During COVID-19
Read the post
Virtual Tools for Collaboration
1. BC SUPPORT Unit’s Electronic Communities of Practice
Are you a member of a BC-based patient-oriented research team that is looking to make working virtually together easier? We offer the BC SUPPORT Unit Electronic Communities of Practice (eCoPs).
eCoPs, which are hosted on our server in Canada, are password-protected online spaces where research teams can collaborate using a variety of tools and functionalities, including:
- News Alerts: highlight new content for team members
- Discussion Boards: discussion in online forums, so all conversations are in one place and searchable – no more digging through old emails.
- Wikis: webpages that anyone can edit to provide information on relevant topics.
- Resources: provide a central repository for your shared files – no more email attachments and document control issues.
2. Remote Work Survival Kit
While a general guide, The Remote Work Survival Kit can be used to support POR teams in a virtual work environment. It is a crowdsourced document, created in response to the COVID19 Coronavirus, to help those who are trying to:
Implement remote working in their organisation.
Set themselves up to work from home.
Protect their business, their staff and teams from effects of this and future pandemics.
3. Team Building & Communication Tool
BC Patient Safety & Quality Council's ATTIC: Activities for Transforming Teams & Igniting Change. ATTIC is a collection of activities that you and your team can use to build teamwork, develop communication skills, enable creative thinking and innovation, and help explore systems. They’re free, downloadable, and a lot of fun.
4. Zoom's Running Engaging Online Events: Your ebook to success!
This set of tips from Zoom are helpful in running a successful Zoom meeting or webinar.
Resources from our CIHR/SPOR-funded Colleagues:
1. Maritime SPOR SUPPORT Unit's COVID-19 Resource Guide
A regularly updated Google doc with links to resources
2. Newfoundland and Labrador SPOR SUPPORT Unit's COVID-19 Resource Page
Links to many resources of potential interest
3. CHILD-BRIGHT's COVID-19 Resources
COVID-19 resources for Canadian youth with disabilities, their families & support teams
4. Can-SOLVE CKD's COVID-19 Webinar
Best practices for working from home
5. Children's Healthcare Canada Webinar
Conducting health research during COVID-19: Challenges and solutions for leadership and productivity
1. How to create a quick Twitter Poster to share new research (includes templates)
The cancellation of scientific conferences has reduced researchers' ability to get their research out. Check this out for a helpful Twitter tip. https://www.youtube.com/watch?v=fQDL8r3r_d4&feature=youtu.be
The BC SUPPORT Unit's training is offered via virtual delivery in most cases. To learn more about what we can offer you and your team around patient-oriented research (POR) training, visit our
- POR Pathways Self Assessment Tools listing POR competencies with associated learning resources
- Resources filterable by your role in research and the area you want more learning resources in
- Events most of which are virtual during the pandemic
- Webinars listing our recorded POR-related webinars for you to watch at your leisure
- Intro to health research for patients listing a variety of self-directed learning resources
- Navigating the COVID-19 Evidence Landscape training module from University of Toronto's Gerstein Science Information Centre
COVID-19 Contact Tracing online Coursera course offered through Johns Hopkins University