This report presents the findings from both a mapping exercise and survey regarding the process of involving children and young people in research as advisers as opposed to research participants. Both these activities were undertaken by INVOLVE Coordinating Centre staff with guidance and advice from the Children and Young People’s Working Group which consists of young people, public involvement leads and researchers.
The mapping exercise demonstrated that there is a diverse range of active Children and Young People’s groups across England, and several parent groups. Key findings from the survey reveal some fundamental barriers that make meaningful involvement difficult: time, money and gatekeepers.
This report additionally outlines the benefits of involvement. It is apparent that there is a need for more education and training regarding involving children and young people in research, especially in relation to ethical issues and involving those who are vulnerable. INVOLVE will use this report as a catalyst for future work.