Patient engagement in research is an approach that involves meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation. Depending on the context, patient engagement may also engage people who bring the collective voice of specific, affected communities.
While patient engagement is becoming more familiar – and required – in research projects, many researchers and patients are still unsure why this engagement is important. The process can appear daunting and many are uncertain how to begin. The “how-to” resources below provide practical and useful tools for researchers and patients who are interested in incorporating this process into current and/or upcoming research.