The BC SUPPORT Unit is excited to bring you a new video series, called Perspectives on POR, which explores different views on patient-oriented research (POR) from individuals across BC. We spoke with patients, researchers, trainees, health care practitioners, and other stakeholder groups about their experiences with, and thoughts on, patient-oriented research to get an understanding of how POR impacts everyone involved.
We will be releasing more Perspectives on POR videos, along with profiles of different interviewees, over the coming months, so keep an eye on our Bulletin to see the full series. If you’re interested in the ways that you can get involved in patient-oriented research, visit our website or complete our inquiry form to connect with one of our regional centres.
Indigenous Perspectives on Patient-Oriented Research
The second installment of our Perspectives on Patient-Oriented Research (POR) video series, which explores different views on POR from individuals across BC, is now online! For this video, we spoke with individuals about the ways in which involving Indigenous communities in patient-oriented research can help to improve health care for all.
“(Patient-oriented research) has offered an opportunity for our Traditional Knowledge Keepers to bring what they know forward into the present health care systems. We are looking at how we include ourselves and what the vision is moving forward,” explained David Archie of Secwepemc Nation.
Chad Dickie, a member of Fort Nelson First Nation and former member of the BC SUPPORT Unit Vancouver Island Regional Centre’s Oversight Committee, expanded on this, explaining the importance of understanding culture to successfully implement patient-centred care.
"(Patient-oriented research) is important because, if you’re doing person-centred care and individually focused trajectories of wellness, you have to understand the thoughts, feelings, and behaviours of that person," explains Chad. "Culture plays a big part. The influence of language plays a big part. They influence... the appropriate message for the community and for the individuals within that community."
Partnerships in Patient-Oriented Research
The first video in the series, Partnerships in Patient-Oriented Research, provides a snapshot of POR across the province.
Researchers expressed the value of including patient partners on research teams.
“Every perspective is unique, and we need to work with community to make something that is going to be relevant and useful,” explained Researcher Gloria Fox of Prince George.
Building on the need to include patients to make research more relevant, Shannon Freeman, a researcher from Prince George, explained the intrinsic value of working with patients: “It’s a privilege, as a researcher, to engage in research with residents (in long-term care) and you can see firsthand the real benefits and joy that it can have in their lives.”
Patient partners reflected on their own experiences, explaining why they chose to get involved in patient-oriented research.
“I think that what SPOR has done for patients in Canada, is it has helped us (patients),... clinicians, physicians, and researchers realize that we need to involve the end-user,” explained Marilyn Culbert, a patient partner from Kelowna.
Other patients expressed their desire to improve health care for future generations. “We have to do better for each other, and it’s what we do today that creates a bigger path for tomorrow, and that’s why I do what I do.” stated David Archie, a patient partner from Secwepemc Nation.