Methods Cluster Update
For more than 15 years, the province of BC has been supporting efforts to ensure that health care data (collected about people's experiences and outcomes) reflects the expert knowledge and skills of a caring team of providers who provide both technically competent and compassionate health care. A province-wide, coordinated survey program has been in place since 2002, providing an important source of information that contributes to an understanding of what matters to patients. The goal of the program has been to give those who use BC’s healthcare services, patients and their families, a voice in improving the quality of the care and services they receive. The Patient-Centred Measurement Methods Cluster is a unique partnership between the BC Patient-Centred Measurement Working Group (BCPCMWG) and the BC SUPPORT Unit.
The PCM Methods Cluster is making plans for a diverse series of stakeholder consultations throughout the province with the goal of obtaining input on priorities about advancing the science of measurement about what matters to patients. Here is a brief summary of activities in progress and in planning:
A “made in BC” project, conducted by Dr. Nick Bansback with an international team of experts, to develop societal values and population norms for the VR-12 generic health status instrument is underway.
- The VR-12 measures the health of a population. Population norms are derived by asking a large representative sample of the general population to self-report their health status using the VR-12. Value sets reflect the preferences of the general public in each country and a currently not available for the VR-12. Please contact Rick Sawatzky, if you would like more information (Rick.Sawatzky@twu.ca)
Survey responses collected by the BCPCMWG since 2010 are being transferred to the Ministry of Health’s central data warehouse, Healthideas.
- This rich data source is now available to Ministry of Health and health authority analysts and researchers (via Population Data BC). Please contact Lena Cuthbertson, if you would like more information (firstname.lastname@example.org)
We invited input on the scoping review of the literature and environmental scan we conducted between March and July to develop a working definition of “Patient-Centred Measurement”. We sought input on priorities for research to advance the science of PCM methods, through:
- Telephone interviews with subject-matter experts locally, provincially, nationally and internationally (July – September 2018);
- In-person focus groups throughout BC (each health authority) with patients/families (September 2018 to February 2019);
- In-person focus groups throughout BC (each health authority) with health researchers/clinicians/decision-makers (September 2018 to February 2019).
Call for proposals:
The BC SUPPORT Unit’s Patient Centered Measurement (PCM) Methods Cluster (MC) is delighted to share the 11 Cluster themes for advancing the science of PCM. These themes were identified through an extensive engagement process, involving interviews with 15 subject matter experts, 7 patient focus groups with 74 patients and caregivers, and 7 stakeholder workshops with 110 researchers and clinical and administrative users of patient-reported experience and outcome measures (PREMs and PROMs) across British Columbia.
An informational webinar to elaborate on the PCM Cluster themes and the process for submitting research project proposals will be held on February 25th from 12-1:00pm. Login details here.
All those interested in being involved in a PCM research project or in proposal development on advancing the science of PCM are invited to contact Heather Bartlett indicating interest in one or more of the 11 themes and intent to:
- Collaborate, or
- Be informed of the project(s).
Those interested in leading a project will be invited to submit an initial 1 page project description, using a standardized template . The BC SUPPORT Unit and /or the PCM Methods Cluster Leads will follow up with all who express interest in submitting a proposal.
Please indicate your interest no later than March 1st, 2019.
Themes for Projects
View the themes here.
Who to Contact
Knowledge Translation Specialist, Methods Clusters: Amber Hui
Lead and Advisor
Lead and Advisor
Dr. Sawatzky holds a Canada Research Chair in Person-Centred Outcomes at Trinity Western University (TWU) and is a professor in TWU’s School of Nursing. He is also Patient-Reported Outcomes (PRO) Lead at the UBC Centre for Health Evaluation and Outcome Sciences (CHEOS).
His extensive research program focuses on the validation and use of person-centred health outcomes measures and quality of life assessment instruments. Dr. Sawatzky’s work has a strong emphasis on integrating a palliative approach to care for people who have chronic life-limiting illnesses, and he is currently developing and evaluating statistical methods for patient-reported outcomes measurement in diverse populations.
Cluster Lead: Dr. Rick Sawatzky
To find out more about Rick Sawatzky, please click here.
Advisor: Dr. Lena Cuthbertson
To find out more about Lena Cuthbertson, please click here.