1:00pm - 2:00pm

Registration Information

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Putting Patient First 2019 Conference Keynote: Ethical Implications of Engaging Patients in Research

Plenary speaker: Jennifer Johannesen; Moderator: Kim McGrail; Discussant: Erin Michalak

Speaker Bio:


Jennifer Johannesen’s son, Owen, had multiple severe disabilities all his life. He died in 2010 at the age of 12. Jennifer’s experiences as Owen’s caregiver and advocate led her to ask broader questions about disability and society, special education and clinical healthcare practice. Specifically: why do we do what we do, and whom does it serve? Jennifer now writes, lectures and consults on healthcare practice and policy related to patient-centred care, patient engagement, and critical thinking in clinical practice. Jennifer recently earned a Master of Science in Bioethics from Clarkson University (Schenectady NY), and is based in Toronto Canada. Website: http://johannesen.ca/ Twitter: @jenjohannesen Facebook: https://www.facebook.com/jen.johannesen