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BC SUPPORT Unit Webinar

Interdisciplinary Collaboration with Patient Partners: Understanding the Experiences of Chronically Critically Ill Residents, their Families, and Staff

Presented by: Sarah Crowe

Advancements in technology and care have created a growing population of persons living with chronic critical illness. Chronic critical illness includes persons living with long term mechanical ventilation. Within Fraser Health there is a group of chronically critically ill long term ventilated patients who reside in residential care and are faced with a variety of stresses. The aim of our study is to better understand the resident, family and staffs’ healthcare expectations and sources of distress. In order to ensure our research is meaningful and practical our team was expanded to include patient partners. The goal of this presentation is to share our experience of collaboration as a research team, from early recruitment and integration of our patient partners to our ongoing collaboration and analysis of data.