12:00pm - 1:00pm
Presenter: Suzanne Vercauteren
Dr. Suzanne Vercauteren brought together members of the public age 10 years and older, pediatric patients and their families as well as healthcare providers and researchers to determine their opinions, expectations and concerns about pediatric biobanking.
A CIHR/SPOR grant was secured to hold workshops with stakeholders involved in biobanking including the public (three separate groups: parents, adolescents 14-18 years and children 11-13 yrs), patients (three separate groups: parents, adolescents 14-18 years and children 11-13 yrs) and healthcare providers and researchers. We asked questions about participating in research and more specifically biobanking including importance of research, facilitators and barriers of biobank participation, engagement methods etc. Results from these workshops highlighted the importance of research and biobanks including pediatric biobanks, but education and engagement as well as creating a research culture are important factors to allow optimal trust and participation of all stakeholders.