9:00am - 11:00am
Central City, 13450 102 Avenue, Surrey BC (Arbutus and Birch Rooms, 4th Floor)
Co-hosted by Fraser Health’s Department of Evaluation and Research Services (DERS) and the BC SUPPORT Unit Fraser Centre
When: March 12, 2019, 9:00am-11:00am
Where: Central City, 13450 102 Avenue, Surrey BC, 4th floor Room Arbutus/Birch
Who should attend: Anyone interested in patient-oriented health research including researchers, patients and public, health care providers, students, and decision makers.
A café style event to share and discuss current research projects that are exploring topical health issues including indigenous’ and seniors’ health, the opioid crisis, and robots in care. The link between these four projects is the meaningful engagement of stakeholders (patients, health providers, decision makers, and academics) on the project team. The teams, led by researchers from SFU and Fraser Health, will share the process and impact of their patient-oriented research.
Becoming Known: Determining Indigenous Cultural Safety and Cultural Humility Priorities
Presenters: Vishal Jain, Lead, Aboriginal Health; and, Shantelle Medel, Research Project Coordinator
Overview: Through community engagement sessions, the Determining Cultural Safety and Cultural Humility Priorities project documented Indigenous community priorities on cultural safety and cultural humility with patient partners in the Fraser-Salish Region. In this presentation, Vishal Jain (Lead, Aboriginal Health) and Shantelle Medel (Research Project Coordinator and MPH candidate) will share the project’s journey of engagement, including emerging Indigenous research priorities that will guide Fraser Health’s development, implementation, and evaluation of future cultural safety and cultural humility research and initiatives.
Responding to the Overdose Crisis: Exploring Risk and Resilience with a Hidden Patient Population in the Fraser East
Presenters: Jennifer Hawkins, Community Health Specialist; James Robson, Peer Researcher, Chilliwack Overdose Response Project; and, Daniel Snyder, Peer Coordinator, Langley Community Action Team
Overview: This project aimed to identify a Participatory Action Research (PAR) process that will lead to a) an increased understanding of a hidden, high risk population; b) better service access and delivery for this same population; and c) create more supportive environments for substance-affected people and people who use substances. At the outset of our project, we pulled together a core team of collaborators including patient partners, Fraser Health staff, researchers from UBC, and staff from the City of Chilliwack. Three half-day workshops with these stakeholders explored the experiences and underlying issues surrounding overdose, and one workshop briefly touched on geographical focus, scope of the project, target populations, and a summary of themes from the previous workshops. Key themes which have emerged include 1) privacy and hiddenness (what keeps people in hiding), 2) risk and perceptions around risk, and 3) barriers, facilitators, and motivators for accessing substance use services.
Prioritizing the Perspectives of Vulnerable Patients in the Development and Design of Research
Presenters: Sarah Canham, PhD, Research Associate, Simon Fraser University; and, Scott A. Small, Project Partner; Director, Catholic Charities Shelter Services, Archdiocese of Vancouver
Overview: Describing a patient-oriented research project, this presentation will describe how the perspectives of vulnerable patients have been prioritized as the project team develops and designs an intervention study. From the outset of the project, “Determining the feasibility of a medical respite intervention study for older homeless patients in Vancouver, BC,” a patient partner with lived experience of homelessness was engaged as a patient co-lead to provide guidance on all project tasks. With her unique perspective and insight having been previously homeless, as well as subsequently working as a housing outreach worker in the homelessness sector, our patient co-lead informed the research team on best practices for engagement with vulnerable patients. Key to this role was her participation in the medical respite task force (MRTF) developed for this project, the recruitment of two additional persons with lived experience of homelessness to join the MRTF, and recruitment of research participants for the data collection phase of the study. Finally, the patient co-lead provided feedback on the acceptability of a medical respite intervention study and data collection processes for vulnerable patients. The patient co-lead’s participation in this project was integral to informing the research team on how to best engage with vulnerable patients and ensure their perspectives are prioritized in designing a medical respite intervention study for older homeless patients in Vancouver, BC.
Partnership in the Social Robot Project
Lillian Hung, PhD, Clinical Nurse Specialist, Vancouver Coastal Health; Clinical Assistant Professor, University of British Columbia; and Postdoc Fellow, Simon Fraser University; and, Mario Gregorio, Community Engagement Advocacy Network (CEAN) Member, Vancouver Coastal Health
Overview: Patient engagement in research could help increase the relevance and quality of research, facilitates knowledge transfer, and enhances credibility, transparency and accountability. The involvement process can begin from identifying priorities to formulating research questions, data analysis and knowledge dissemination. However, in the field of dementia care, actively engaging patients to co-research is a novel practice and needs exploration. The social robot project at VGH demonstrates the complexity, challenges, and benefits of involving patient partners in research. In this presentation, Mario Gregorio (a co-researcher, a person living with dementia) and Lillian Hung (a nurse researcher) will share lessons learned and a few practical tips about their experiences in the social robot research.
Hosts website: https://www.fraserhealth.ca/research#.XEtQRPlKiUk