11:00am - 12:00pm
Twitter

BC SUPPORT Unit Event

Conflicts of interest in Patient-Oriented Research Tweetchat

Join us for a tweetchat about conflicts of interest in Patient-Oriented research!

Guest host Iva Cheung will be tweeting from @BCSUPPORTUnit on March 10th, 12:00 to 1:00 PM PST to encourage diverse attendees in the Twitterverse to explore research priorities in the area of conflict of interest in patient-oriented research and what next steps we should take on this issue.

We’ll be using the hashtag #COIinPOR as we go on our Tweetchat journey together. 

Hashtag: #COIinPOR
Date: March 10th, 2021

Time: 11:00 AM - 12:00 PM 
Topic: Conflicts of interest in Patient-Oriented research

A conflict of interest happens in health research when a research team member’s secondary interests—like their own financial gain or the promise of status or prestige—influence their professional interests and “come into conflict with ethical duties towards patients, health professionals, and society.”

Conflicts of interest can exist in many ways, including when researchers partner with industry, private donors, or patient advocacy organizations. Conflicts can be financial or non-financial in nature and can have an impact on equity and credibility -equity because not everyone has the same access to funding and opportunities, and credibility because contributions of funding can bias what gets studied and how results are interpreted. This could result in ethical problems or poorer quality of research.

Conflicts of interest in health research are an understudied area, and there’s even less information when it comes to conflicts of interest in patient-oriented research, where patients are full members of the research team. We don’t have much guidance on how best to identify and manage conflicts of interest. Likewise, as patients are relatively new partners in research teams, we don’t know how conflicts of interest are discussed or shared, or what support might be needed to help address these issues. With this tweetchat, we hope to engage the patient-oriented research community in identifying what the priorities are in the area of conflict of interest in patient-oriented research and what next steps we should take on this issue.

About the project "Building Towards Consensus On Compensation and Conflict in Patient-Oriented Research (POR)” 

This project is funded through the Michael Smith Foundation for Health Research (MSFHR) Convening & Collaborating (C2) program. The C2 program is designed to bring together researchers and research users to co-develop research aligned with BC’s health system priorities, increasing the likelihood that research findings will be relevant to users.

Project team:

Research Co-leads:

Davina Banner-Lukaris, University of Northern British Columbia

Marc Bains, Co-founder and Vice-president of HeartLife

Team Members:

Stirling Bryan, University of British Columbia, BC SUPPORT Unit

Alison Hoens, University of British Columbia

Michelle Mujoomdar, Canadian Agency for Drugs and Technology

Trina Fyfe, University of Northern British Columbia

Jennifer Brown, Northern Medical Program

Haydn Molcak, Northern Medical Program

Daman Kandola, University of Northern British Columbia

Shayna Dolan, University of Northern British Columbia

Patient-oriented research (POR) describes the process of involving patients and their caregivers in research, not just as participants but also as collaborators and partners. In response to this, there have been increasing calls for patients to receive compensation for their contributions. However, compensation practices and sources of financial support are varied. Increasing numbers of patients and patient organizations are receiving financial support through industry or pharmaceutical organizations, as well as non-profit advocacy groups.  While this has opened up new opportunities for patients to be involved in research, it is unclear how potential conflicts of interest are understood and managed.

This project seeks to critically explore the compensation of patients in POR and to gain insights into how conflicts of interest are, and could be, managed. This tweetchat is one of the ways in which we will gather a range of perspectives from patients and stakeholders to identify key research questions, gaps and priorities.