The Patient-Centred Measurement methods cluster aims to understand what matters most to patients by collecting information on their experiences and outcomes. Through collecting, reporting and incorporating these metrics into research and services, patients and families are able to have an impact on the quality of care that they receive.
Webinar: Results of aside-by-side comparison of two generic PROMS: VR-12and EQ-5D-5L
January 27th from 4-5 pm PST
This webinar is offered as part of Dr. Kwon’s post-doctoral fellowship with the BC Office of Patient-Centred Measurement (BC OPCM) and the Trinity Western University School of Nursing with funding from the BC SUPPORT Unit.The purpose of the webinar is to provide guidance on the use of two commonly used generic patient-reported outcome measures (PROMs) in patient-centred measurement health surveys: The VR-12
and EQ-5D-5L. Dr. Kwon will present the results of his comparative analysis of both PROMs using BC OPCM survey data, linked with administrative health data.
Projects in this Cluster
Projects are coded by colour to the themes listed above.
Patient-Driven Data Collection and Usage in Chronic Disease Management
Project Lead: Nadia Khan
For chronic conditions like hypertension, patients must take an active role in the management of their illness including disease monitoring, evaluating symptoms, changing and monitoring health behaviors, and relaying information to often multiple providers for coordinated care. Currently, this is poorly ... read more
Improving methods for using patient-centred data for clinical purposes
Project Leads: Jason Sutherland
Patient-reported outcomes (PROs) are increasingly being used to measure patients perceptions of their own health and are being applied to measuring the patient's perspectives of the effectiveness of interventions. In the field of planned (elective) surgery, PROs are used by some surgeons as ... read more
Advancing the Science of Patient-Centred Measurement in Team-Based Care
Project Lead: Francis Lau
This study will develop new methods of including patient-generated data as part of Team-based Care and Primary Care Network. Examples of patient-generated data include ones experience with care teams, blood pressures as health-related data, and quality of life as outcome data. We will create a set of ... read more
Guidelines for Healthcare Providers: Application of Patient-Centred Measurement Data in Practice
Project Lead: Angela Wolff
In healthcare there is a goal to provide patient-centred care (PCC) as a hallmark of achieving effective, quality health care. What this means is that care focuses on the needs and perspectives of the patient. As such, healthcare providers (HCPs) are faced with the challenge focus on what matters to the ... read more
Towards Equity-Informed Care: Making Visible the Needs of Marginalized and Vulnerable Populations
Project Leads: Kelli Stajduhar
People who face inequities like homelessness, poverty and stigma and who also have chronic health conditions (such as lung, liver or kidney disease) are really disadvantaged as their health is declining. Research shows that these people have many unmet needs, that they do not trust the health care system or its ... read more
A Qualitative Investigation of How to Integrate Primary Caregiver-Reported Outcomes Across the Colorectal Cancer Journey
Project Leads: Michael McKenzie & Fuchsia Howard
Primary caregivers are key family members or friends who take on the work of helping patients throughout their cancer journey with their physical, emotional, disease management and practical needs. Because the cancer journey includes a long series of stressful events, primary caregivers have high ... read more
Decolonizing Birth Research: Indigenous Researchers, Clinicians, and Community Experts measuring respect, disrespect and mistreatment in Indigenous childbearing communities
Project Leads: Rachel Olson, Wanda Philipps-Beck and Saraswathi Vedam
The goal of this study is to co-create study questions that can capture people's lived experiences of respect and cultural safety versus disrespect, discrimination, and/or mistreatment, when they seek health care in British Columbia. We are particularly interested in amplifying the voices of ... read more
A Roadmap for Developing Indigenous Patient-Reported Outcome and Experience Measures
Project Leads: Jenny Morgan and Lori-d'Agincourt-Canning
Patients are often asked by staff at hospitals or doctor's offices to complete surveys or questionnaires in order to measure or assess their health or experience with health care services. However, at this time there are very few surveys that have been developed for Indigenous populations... read more
Cultural Safety in Patient-Centred Measurement Methodologies
Project Leads: Namaste Marsden, Diana Clarke and Megan Misovic
We are proposing to conduct a knowledge synthesis consisting of a Western scoping review and qualitative interviews with 3-6 key informants. The objective of the knowledge synthesis is to gather evidence of culturally safe and appropriate approaches to patient-reported quality and safety assessments of ... read more
Cross-cultural Validation Methods for Generic PROMS
Project Leads: Tina Wu and Bruno Zumbo
Multiculturalism is highly valued in Canadian society. In the Province of British Columbia (BC), based on Statistics Canada (2016), there are more than 200 ethnic groups reported in Greater Vancouver. About 42% of the population is made up of visible minorities. There is a need for enhancing the ... read more
Lead | Rick Sawatzky
Dr. Sawatzky holds a Canada Research Chair in Person-Centred Outcomes at Trinity Western University (TWU) and is a professor in TWU’s School of Nursing. He is also Patient-Reported Outcomes (PRO) Lead at the UBC Centre for Health Evaluation and Outcome Sciences (CHEOS). His extensive research program focuses on the validation and use of person-centred health outcomes measures and quality of life assessment instruments. Dr. Sawatzky’s work has a strong emphasis on integrating a palliative approach to care for people who have chronic life-limiting illnesses, and he is currently developing and evaluating statistical methods for patient-reported outcomes measurement in diverse populations.
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Advisor | Lena Cuthbertson
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