Thank you for your participation! Here are the results, based on your responses, of our patient needs survey, which was available in February, 2018.
Why have a survey?
This survey asked self-identified patients, friend/family caregivers, and members of the public about the kind of training they needed to effectively participate in patient-oriented research (POR).
The information collected in this survey will be used to guide the BC SUPPORT Unit training planning for the upcoming year (financial year 2018-2019).
Who completed the survey?
69 people responded to the survey belonging to the following self-identified groups (as represented in the graphic below):
- Patients: 41
- Caregiver: 15
- Public: 7
- Other: 5
Where were people from?
Most respondents (24 individuals, n=24) were from Vancouver Island, followed by Vancouver (n=17), Interior (n=13), Fraser (n=10), and the North (n=3). The figure below shows how respondents self-identified in each of these regions.
What skills and levels of training did they want?
The survey asked respondents to indicate their interest in six categories of skills, and the level of training they believed they would need. The categories were:
- Health research (includes methods)
- Patient-oriented research (includes methods)
- Communication skills
- Skills for working within a multidisciplinary team
- Critical analysis skills
- Conflict resolution skills
The available responses to each category were: a) Not interested, (b) Interested; beginner, (c) Interested; intermediate, and (d) Interested; advanced. The data from all respondents is shown in the figure below.
The highest response rate (%) for each category were:
What were the barriers to participating in patient-oriented research?
The survey asked respondents to rank several barriers from most important to least important. The barriers were:
- Having enough time to attend
- Registration fee
- Travel cost
- Access to technology
Overall, the data suggests the following ranking of importance for each barrier:
Other barriers identified by respondents included: time of day, and language difficulties.
What kind of events/activities would people participate in?
A question asked respondents how likely it was they would attend a specific opportunity. Responses included: very likely, likely, neutral, unlikely and very unlikely. The identified options were:
- Attend a POR workshop in-person
- Access online POR resources (e.g., webinars)
- Join an online POR group or network
- Join an in-person POR group or network
- Opportunities to interact with POR researchers
- Opportunities to interact with other patients engaged in POR
Overall, respondents were most likely to want to participate in “opportunities to interact with POR researchers” and “opportunities to interact with other patients engaged in POR,” and were least likely to “join an online POR group or network.”