The main purpose of the Council is to engage with BC SUPPORT Unit personnel related to specific issues and projects that arise from Unit operations.
|Anni Rychtera (Vernon)|
|Hello, my name is Anni Rychtera, and I am the co-facilitator for the Patient-Oriented Research Workshop with the BC SUPPORT Unit. I am a former Pediatric Nurse Practitioner, Natural Health Practitioner and College Educator in Health Sciences. I was involved in clinical research working at the first unit for haplo-identical Bonemarrow Transplant for children. My lived experience with chronic nerve pain (after a sports injury and delayed surgery), and being a cancer survivor and thriver, taught me the importance of being an informed patient and an equal partner in health care and decision making. After the trauma in 2000 I was instrumental in creating the position of ‘Patient Advocate” in VJH. After participating in the UVic’s Self-Management Program for Chronic Pain and Living with chronic health conditions, I became a volunteer facilitator and a Health Coach for UVic’s self-management programs. Since 2008 I am a “First Link” Peer Support Volunteer for the Leukemia and Lymphoma Society. I am actively involved with Patient as Partners/Patient Voices Network in different roles as a volunteer since 2014. I am a member of the Patient Advisory Committee for the Association of Registered Nurses of BC and the Standing Committee on Health Services and Population Health with the Ministry of Health.|
|Dorothy Egan (Kitimat)|
|I was born in New Westminster in January, 1937. The Pattullo Bridge was built that year too and now we are both showing our 80 years. I went to school at St. Anne’s Academy in New West., Millside school at Fraser Mills, Coquitlam and Como Lake High. I learned to teach elementary kids at Normal School and went to Kitimat to take a grade 2 class for a salary of $2,525 a year! Married a wonderful, Christian man, had 3 children and countless foster children. Eventually I had time to study again and UBC granted me a teachers degree. Bill died in ’83, I went to Papua New Guinea and later Cameroun as a missionary. Both countries made sure I became very familiar with malaria and dengue fever. Then after 22 years of widowhood dedicated to volunteer work and grandchildren, I married another fine Christian man who had a stroke on our honeymoon in Cuba so I spent the next 7 years nursing him. Now I’m in an assisted living facility and the highlight of my day is spending time with great-grandchildren. It’s been a wonderful life.|
|Dustine Tucker (Summerland)|
|Dustine is a retired Social Worker who has worked in hospitals and community mental health programs in both Alberta and British Columbia over the past 30 years. During her career, she was involved in the development and program evaluations of numerous programs. As a student, she conducted research to explore the attitudes of graduating social workers toward domestic violence and also completed her Master’s Degree by researching the attitudes of fathers who were in non-traditional roles with their children. In the past 10 years she been a caregiver to her now 93 year old mother who has lived in complex care since 2008. As well, she has provided support to her husband who was diagnosed with Congestive Heart Failure two years ago. During this time, she also had both her hips replaced. After these experiences, she has become even more passionate about utilizing the voices of patients in health care research to change the culture of health care in British Columbia.|
|Esther Storvold (Trail)|
|I have a beautiful family of four children, their spouses, and eight grandchildren. I work for Selkirk College as a course developer and instructor for medical terminology and medical transcription. I am a member of PVN (2011) and have been involved in many working groups and workshops. I love family get togethers and travelling.
I have had several family members pass away due to cancers such as glioblastoma multiforme (brain tumor), pancreatic cancer and malignant melanoma, all that currently have no cure thus my interest and support of research.
|Jaime Ascher (New Westminster)|
|Jaime is the president of Still Life Canada, and is involved in Stillbirth and Neonatal Death Education, and the Research and Support Society.|
|Jim Mann (Surrey)|
|After a career focused on marketing, communications and advocacy in the tourism and transportation sectors, Jim is now an Alzheimer’s Advocate stemming from being a care partner for his Mother, who had dementia, and his own diagnosis of Alzheimer’s disease in 2007 at the age of 58. Jim served six-year terms on the boards of the Alzheimer Society of BC and the Alzheimer Society of Canada, and continues to ‘advocate to educate’ through other volunteer efforts. He is an advisor to a PhD Candidate who is Implementing Person-Centred Care in a Specialized Acute Unit, advisory board member to TREC (Translating Research in Elder Care), and various Quality-of-Life research projects such as SALTY (Seniors Adding Life to Years). Jim is a member of the Research Management Committee of AGE-WELL (Aging Gracefully across Environments using technology to support Wellness, Engagement, and Long Life), member of the Access Transit Users’ Advisory Committee, and a member of the e-health Integrated Curriculum Working Group through the Office of the Vice-Provost Health at the UBC. As a part of the education process around living well with dementia, Jim was instrumental in the January 2012 launch of a social media campaign In Jim’s Shoes.|
|Kent Cadogan Loftsgard (Vancouver)|
|Kent has been a Patient Partner to the BC SUPPORT Unit since the summer of 2016. In addition to his lifelong cerebral palsy and asthma, as well as his endless efforts as a patient advocate and caregiver, Kent contributes his diverse professional expertise in health media production, health specialty journalism, interdisciplinary health care education, and health research to complement the collaborative development and growth of the Unit.|
|Laurel Radley (Vancouver)|
|Laurel is the patient/citizen member of the BC SUPPORT Unit Interim Governing Council. She is a long-time member of both the BC Patient Voices Network and the Vancouver Coastal Health Authority Community Engagement Advisory Network.|
|Lise Berube (Victoria)|
|Lise has worked for Island Health since 2014, when she began working on the development of iHealth, before moving over to the position of Case Manager with the Patient Care Quality Office.
She has a background in Sociology and a Masters degree in Dispute Resolution from the University of Victoria.
Since receiving her diagnosis of breast cancer in early 2016, Lise has spent over a year receiving weekly and often daily treatment in Victoria, and hopes she can use her recent experiences as a patient in BC to inform sustainable positive changes to the health care system.
Lise enjoys spending time in the outdoors, running, camping, and hiking with her husband, two young children, and her dog Lucky.
|Norma McClelland (Victoria)|
|Norma is a retired Nurse with a graduate and postgraduate degree in Health Care. She has experience as a caregiver to both her parents and as a patient herself. She has volunteered with Patient Voices Network since 2011. Her volunteering opportunities include Hospice, End of life Care, Patient Advisory Council (Vancouver Island) TORCH (Towards Optimal Residential Care Health) and Advancing Patient-Oriented Research with the BC Support Unit.|
|Sandra Zelinsky (100 Mile House)|
|Sandra is a graduate of the Patient and Community Engagement Research program, University of Calgary and a trainer for the Strategy for Patient-Oriented Research (SPOR) Foundational Curriculum. She is a member of the Canadian Institute for Health Research (CIHR), Strategy for Patient-Oriented Research (SPOR) review committee where she uses her expertise in Patient-Oriented Research to review SPOR research proposals for grant funding. She is using her research skills to advance Patient-Oriented Research and was recognized by the Canadian Patient Safety Institute as a Patient Safety Champion for her work on a PaCER study done on behalf of Alberta Health Services. Her work in research has provided her the opportunity to present at several National and International conferences as well as to chair and/or co-chair at various conferences and meetings. She is currently a Patient Engagement Researcher on several studies including the National Chronic Disease Network SPOR study called IMAGINE. It is her experience as a breast cancer survivor and living with Crohn’s disease for the past 24 years that inspires and motivates her to work in Patient-Oriented Research with the goal of bringing the patient perspective, experience and voice to health research.|
|Sarah Fletcher (Vancouver)|
|I am currently a third-year university student, studying towards a Bachelor of Health Sciences degree at the University of Calgary, although I grew up in Vancouver and continue to spend my summers and vacations at home. Over the past several years, I have been involved as a youth advisor on both health care and health research councils, including the KidsCan research initiative at BC Children’s Hospital, the Child and Youth Advisory Council at the Alberta Children’s Hospital, and the International Children’s Advisory Network. In addition to my passion for patient and family advocacy in research and health care, I am also passionate about the inclusion of children with special needs in recreational activities and have volunteered and worked for several thousand hours in this field. In my ever-diminishing free time, I enjoy reading and listening to audiobooks, eating sushi with friends, and spending time with my family and our dog, Dexter.|
|Sherri Mytopher (Fort St. John)|
|Sherri is currently on the Board of Directors with the Northern Regional Chapter of the MS Society of Canada. Being diagnosed with MS so young, she felt it was important to have her voice heard and bring awareness about MS to her community.
She has been working in the financial services industry for 15 years. Sherri has been with PVN since January and has taken part in two engagements.
|Sunny Loo (Sooke)|
|Sunny is a volunteer with the Patients as Partners/Patient Voice Network. A pharmacist by training with a focus on technology and innovations, Sunny’s 35 years in the profession included development of innovative patient support programs, implementation of medication management pilot programs in several provincial jurisdictions, and participation in the Ontario e-Health initiative as Director of e-Health for the Ontario Pharmacists Association.
Currently Sunny and his wife operate a consulting practice that strives to better understand physician practices.
However, most importantly, Sunny is a patient living with a rare form of vasculitis (Wegener’s Granulomatosis) for the past 7 years. Having been a part of the health care system as both a professional and as a patient, he looks forward to sharing his experience with others.