Patient-Centred Measurement

Lead and Advisor


Cluster Lead: Dr. Rick Sawatzky

Advisor: Dr. Lena Cutherbertson

Methods Cluster Update - July 2018

For more than 15 years, the province of BC has been supporting efforts to ensure that health care data (collected about people's experiences and outcomes) reflects the expert knowledge and skills of a caring team of providers who provide both technically competent and compassionate health care. A province-wide, coordinated survey program has been in place since 2002, providing an important source of information that contributes to an understanding of what matters to patients. The goal of the program has been to give those who use BC’s healthcare services, patients and their families, a voice in improving the quality of the care and services they receive. The Patient-Centred Measurement Methods Cluster is a unique partnership between the BC Patient-Centred Measurement Working Group (BCPCMWG) and the BC SUPPORT Unit. 

The PCM Methods Cluster is making plans for a diverse series of stakeholder consultations throughout the province with the goal of obtaining input on priorities about advancing the science of measurement about what matters to patients. Here is a brief summary of activities in progress and in planning:

In progress:

A “made in BC” project, conducted by Dr. Nick Bansback with an international team of experts, to develop societal values and population norms for the VR-12 generic health status instrument is underway.

  • The VR-12 measures the health of a population.  Population norms are derived by asking a large representative sample of the general population to self-report their health status using the VR-12. Value sets reflect the preferences of the general public in each country and a currently not available for the VR-12.  Please contact Rick Sawatzky, if you would like more information (Rick.Sawatzky@twu.ca)

Survey responses collected by the BCPCMWG since 2010 are being transferred to the Ministry of Health’s central data warehouse, Healthideas. 

  • This rich data source is now available to Ministry of Health and health authority analysts and researchers (via Population Data BC).  Please contact Lena Cuthbertson, if you would like more information (lcuthbertson@providencehealth.bc.ca)

In planning:

We will be inviting input on the scoping review of the literature and environmental scan we conducted between March and July to develop a working definition of “Patient-Centred Measurement”.  We will also be seeking input on priorities for research to advance the science of PCM methods, through:

  • Telephone interviews with subject-matter experts locally, provincially, nationally and internationally (July – September 2018);
  • In-person focus groups throughout BC (each health authority) with patients/families (September 2018 to February 2019);
  • In-person focus groups throughout BC (each health authority) with health researchers/clinicians/decision-makers (September 2018 to February 2019).

Please stay tuned for details about the processes, dates/times, and locations for the expert interviews and patient focus groups.  If you are interested in putting your name forward to join a focus group, please contact Alison Hoens, Knowledge Translation Specialist for the Methods Clusters.

Project Themes

In development.

Reports/Publications/Presentations

In development.

Resources

In development.

Who to Contact

KT Specialist: Alison Hoens