(formerly called Permission to Contact)
With only 15% of British Columbians aware of current health and research participation opportunities, but over 70% interested in participating in health research (source: CanadaSpeaks2015, Research Canada), the BC Health Research Connection project’s goal is to help connect patients and the public to health research opportunities meaningful to them. The project will create a provincial platform that will also serve to raise awareness and improve understanding of health research among British Columbians, and help health researchers find potential patient partners and research participants. We are working with patients and members of the research community from all health authorities to plan this project.
These objectives will be achieved through the creation of the following:
|A central website for patients and public to learn about health research and connect and engage with research opportunities.||A research registry for patients and public to self-enroll online, provide their contact and health-related information, and match them to appropriate research opportunities.||An inventory of active health research studies and other types of research engagement opportunities.|
Demonstration projects have a two-year completion period. It is expected that the provincial platform will be launched in late 2018. The pre-project and initiation phases of the project involved the development of a business plan, initial consultations with stakeholders and subject matter experts, and conducting an environmental scan of existing research recruitment programs and methods.
April 2017 – Announcement of our new project name and the establishment of Working Group
May 2017 – Webinar: Connecting patients to health research opportunities (June 22nd, 11:30am)
We invite you to provide input and share your thoughts throughout the project. Please contact Stefanie Cheah, Project Manager.