Putting Patients First:
Partnerships for Better Health Research
November 9, 2017
Marriott Vancouver Pinnacle Downtown | 1128 W. Hastings, Vancouver | (604) 684-1128
View our presenter biographies here.
|8:00-9:00||Networking Breakfast||Exhibits: Foyer|
|9:10-9:20||Welcoming Remarks: Canadian Institutes of Health Research|
|9:20-9:30||Welcoming Remarks: BC SUPPORT Unit|
|9:30-10:10||Doing a good thing well? Considering quality in patient-oriented research|
|10:10-10:30||Q&A | Lead: Kim McGrail|
|10:30-11:00||Break: Nutrition & Networking||Exhibits: Foyer|
|Breakout sessions (not repeated)|
|11:00-12:00||Breakout session #1a
Why does the BC SUPPORT Unit have Methods Clusters? What are they doing? How can I get involved?
Methods Clusters are the primary ‘science’ pillar of the BC SUPPORT Unit. The mandate of the clusters is to advance the evidence base of scientific methods, within the context of patient-oriented research, by fostering a community of BC-based methodologists and other stakeholders to undertake methodology-focused projects. Thus far, we have moved to establish five clusters: Knowledge Translation & Implementation Science, Real-World Clinical Trials, Health Economics & Simulation Modelling, Data Science & Health Informatics, and Patient Engagement. There will be a sixth cluster, in Patient-Centred Measurement, to be taken forward later in 2017. The session will provide an overview of the rationale for BC’s approach in establishing methods clusters, and give some examples of projects being taken forward. The leads of all clusters will be at the session, and will form a panel to answer questions and engage in discussion with session participants.
|Breakout session #1b
Moderator: Kent Cadogan Loftsgard
Partnering with Patients & Community Members on Research Teams
Panel members will provide a description of their research projects and how the engagement of patients informed and influenced the direction of the research.
|Breakout session #1c
Engaging stakeholders to break the cycle of recurrent fracture
This session highlights a patient-oriented research team’s project to address a gap in osteoporosis care identified by patients and health providers. Dr. Sonia Singh and patient partner Larry Funnell will discuss their research and implementation journey that brought together a group of leaders, health care providers and patients from Fraser Health’s Emergency, Surgery, Older Adult, Home Health and Primary Care. Their aim was to develop a health care model that would prevent additional breaks in patients admitted to hospital with an initial fracture. Bringing together literature and experiential and clinical expertise led to the development and testing a new program. Results were so impressive that local decision makers found a way to fund the program on a permanent basis. The duo will describe the process of bringing the the patient-oriented research team together, securing funding from multiple sources, and creating a sustainable impact.
|Breakout session #1d
(Re)Building Relationships with Indigenous Communities through Research to Support Revival, Renewal, and Reconciliation for Health
|Poster Presentations | Shaughnessy Salon (to 12:30)|
|1:00-2:00||Moderator: Cindy Trytten
Plenary Speaker: Charlotte Loppie
|2:00-2:15||Q&A | Lead: Kim McGrail|
|2:15-2:30||Break: Nutrition & Networking||Exhibits: Foyer|
|Breakout sessions (not repeated)|
|2:30-3:30||Breakout session #2a
Presenter: Adeera Levin
Can-SOLVE CKD: A patient-oriented research network to transform kidney care in Canada
Can-SOLVE CKD is a unique pan-Canadian patient-oriented research network that places patients at the centre. Building on three years of priority-setting exercises with patients, their families, care providers, and policy-makers, we have developed a set of 18 research projects that intend to transform kidney care in Canada. These projects, informed by the lived experience of patients, will: enable earlier identification, triage and treatment of kidney disease in vulnerable populations, specifically emphasizing Indigenous peoples; offer novel treatments and strategies to people with inherited and acquired specific kidney diseases; and develop patient-friendly tools and methods of delivering care that are aligned with 21st century technology and ethical principles. This presentation will provide an overview of the processes used to build and launch the network, including its research projects and the core infrastructures necessary to ensure sustainability.
|Breakout session #2b
Fostering Patient Engagement: A Focus on Digital/eHealth Methods
In this session, Dr. Erin Michalak and her colleague, Sara Lapsley, will talk about supporting patient engagement in research and knowledge exchange in the digital and eHealth realm. Practical examples of digital engagement methods will be described (for example, social media, online blogging, video production, webinars, telehealth). Findings from a recent study exploring the impact of various online engagement strategies will be presented, and lessons learned and new opportunities explored.
|Breakout session #2c
The Power of Lived Experience: Informing Culturally Safe Care for People who Use Substances
Societal attitudes related to substance use often permeate health care intentionally and unintentionally. The result is that people often feel unsafe to share their history or current use of substances when accessing health care. While primary care is considered an essential service for every British Columbian, many people who use substances do not have access to primary care and may avoid or delay accessing health care due to concerns and fears about how they will be treated. Patient oriented research provides a unique opportunity to bring forth the unique perspectives of people with past or current experience with substance use and primary care to inform strategies for creating culturally safe primary care. In this presentation, we will share the process of designing and implementing a patient orientated research project that is composed of people with lived experience, researchers, policy and practice partners drawing on principles of community based participatory research. We will identify both critical considerations in undertaking patient orientated research in this context as well as key challenges and how they may be addressed in the research process.
|Breakout session #2d
Presenter: Sheona Mitchell Foster
Re-imagining Research: Dismantling colonial knowledge structures
Existing research structures and health systems in Canada are inherently colonial in nature and this limits genuine engagement from Indigenous and marginalized people in clinical and community health research, bringing unique challenges in patient-oriented research. Using an example from approaches to engaging Indigenous women struggling with substance-use during pregnancy in northern BC, the session will include a short didactic and narrative portion followed by small group discussions on incorporating decolonizing methodologies in strategies for patient-oriented research.
|3:35-4:30||Wrap-up panel discussion
Moderator: Cindy Trytten
|4:30-6:00||Networking wine & cheese reception (cash bar)|