We have compiled useful online resources for researchers, patient partners, health system decision-makers and health care providers, including:
SPOR: Learn more about Canada’s Strategy for Patient-Oriented Research (SPOR) led by the Canadian Institutes of Health Research (CIHR).
Other SUPPORT Units: Learn more about some of the other SPOR SUPPORT Units across the country by visiting their websites: Alberta, Saskatchewan, Manitoba, Ontario, Maritime (PEI, NB, NS), and Newfoundland and Labrador.
Glossary of Terms: Our glossary includes our definitions of frequently-used terms and acronyms.
CIHR Jargon Buster: A glossary that provides lay language definitions for frequently-used health research terms, including those related to Canada’s Strategy for Patient-Oriented Research (SPOR).
It Starts With Me: A glossary that provides lay language definitions for clinical trials research.
Presentations: Members of our operations team are available to meet with stakeholders* who are interested in learning in person about Canada’s Strategy for Patient-Oriented Research (SPOR) and the development of the BC SUPPORT Unit. When you meet with us in person, we’re able to provide more context and information, and there is the opportunity for a discussion. To book a presentation, please see our Contact page.
*Our stakeholders include researchers, patients, health care providers and health system decision makers who are already involved in patient-oriented research or who would like to become involved.
BC patient engagement interview report, May 2016: Building Momentum for Patient Engagement in BC Research, a report on interviews conducted for the BC SUPPORT Unit patient engagement plan. The interviews were conducted in 2015 to begin to understand the current state of patient engagement in BC and help plan for the future. Interviewees included 27 health researchers and other professionals who have engaged patients in patient-oriented research or other initiatives to improve the health of the population and the health care system. Companion document: Building Momentum – Appendices 2 and 3.
Organizations experienced in patient engagement: Learn more about these examples of organizations that have a history of successfully engaging patients: INVOLVE in the UK, the Patient Centered Outcomes Research Institute in the US, and Patient Voices Network in British Columbia.